I just thought I'd post an update to say that I'm still here! This is a confusing situation. I saw my neurologist yesterday. My doctors have been talking with each other. It seems like the consensus is that they think I am sick enough to warrant being in the hospital, but they don't know what to do to treat me right now. My doctor moved up my next IVIG treatment to the start of next week and she is increasing the frequency of the infusions. She increased the frequency of my Mestinon again. We talked about starting prednisone, but unfortunately I don't do well with prednisone. She is going to contact the neuromuscular specialists at the local teaching hospital, where I went previously. She'll find out if they will see me again, and maybe they can do more investigation or make further recommendations. So that is where things stand at the moment.

Anyway, thanks again for everyone's kindness, caring, and support. One step at a time, I guess.

Take care,
Erin