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Old 08-04-2016, 09:31 PM
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en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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This is great news!

Since you don't have documented immune disease, it will be interesting to see if you get positive results. There is new documentation (someone here posted an article) that IVIG can be helpful with SFN (not immune based). The proof is in the pudding, as they say. You will know in a few months if it's helpful (but can take a while for significant improvement). It is also worth suggesting to have repeat skin biopsy in a year, to document the improvement.

Please keep us posted with how you tolerate the infusions and whether you notice improvement.

Are they doing pre-medications for your infusion? Typically it consists of Tylenol, Benadryl, and IV steroids...all to help keep you from having reactions. Make sure to hydrate WELL before and during the infusion!! This is VERY important to also help keep reactions from occurring.

I'll be looking for your update next week on how you did with the first infusion.
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