Quote:
Originally Posted by trinba
Hi, I'm trying to find other people with this condition to learn more about it, since my boyfriends little 12 year old sister has a severe case of this in Japan and we are trying to bring her here to the U.S to get treatment. If you read this message and can share some information I would really appreciate it!
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First time I've ever heard of this. OMG, must be horrible to go through.
I hope you find the care you need. Can't they do anything in Japan? It's not exactly a 3rd world country, right?