Quote:
Originally Posted by mskari85
Thank you so much for your response - yet again. I am taking methotrexate for the RA. I've only been on it for a little over a month. I just got my RA diagnosis July 1, 2016. I actually went to the doctor in May for my PN, which I have been dealing with since January of this year. Then I mentioned my joint pain, which I always attributed to being overweight, and she ran blood tests. Then suddenly I'm at a rheumatologist with rheumatoid arthritis, not a single clue what it was, being sent home with some folder of information about it and a medication prescription for MTX. Still no clue why the PN, which is why I went to the doctor to begin with.
I am rather inflamed. But because I am overweight, it's hard for me to SEE how much. My hands hurt like absolute hell, even using the turn signal in the car is painful. I feel like every one of my finger joints are broken. My Rheumy prescribed me prednisone, haven't taken it yet, I am too scared. So, like I mentioned, I've had this joint pain for 3 years now. I kind of thought MAYBE it was something not great but I think I was too afraid to know. Then came the PN this year (long before I started taking any meds for RA) and when the PN got worse in May, so did the joint pain. So, I have to believe there is some correlation.
Thanks for the information, once again. I am so glad you got a diagnosis. I wish none of us had to deal with any of this, it really does not seem fair, but it must be nice to have an answer finally. I hope I will someday too.
|
I can't tell you how much I relate to what you are experiencing. My seronegative RA was pretty much as you describe yours. I too was overweight, also grieving having lost both parents suddenly and prematurely. I was menopausal so assumed it was all hormones but it did seem strange to have both wrists, both sets of knuckles and both knees all excruciatingly painful. I thought it was a combination of my weight, hormones, grief and hypothyroidism with osteoarthritis.
My Rheumatoid Factor was a low positive and rose over 2011. My inflammatory markers were soaring. But the small fibre neuropathy had started the year before and then these and Raynauds (which I'd never previously suffered from) would flare in tandem. Like you I couldn't drive - couldn't turn the key in the ignition even - wrists felt fractured and I lived in splints. Then I was given a steroid injection and my symptoms clean disappeared for a few months. Since then I've had methotrexate and three others plus several long courses of Prednisolone - which masks things brilliantly but made me eat more. I can't take NSAIDs anymore.
It's only now that I look back on my pre-RA days and see a rather poorly woman with severe eczema, alopecia and rhinitis. I think I've had Sjogrens for decades. The RA was just a new manifestation of the same thing. In this sense it wasn't proper RA - it was synovial swelling caused by the Sjogrens.
I think three years is quite a long time to put off diagnosis for and still think your peripheral neuropathy may be an unusual complication of your RA. And you do at least have certainty with your diagnosis of RA - which is more than I ever did. Even my original rheumy said as he diagnosed me I should "keep an open mind - things could change". Methotrexate with Hydroxichloraquine knocked my Sjogrens RA into the long grass but it took about six months to a year. Hang in there - there are lots more medications a seropositive person like you can try. Take care. Mat x