Quote:
Originally Posted by dl4plans
MG is a brand new diagnosis for me. I keep seeing references to MG crisis but am unsure what those are. Can someone please explain? Have you ever had one? What were the first signs? What is the best course of action in the event of one? Does everyone eventually have one?
|
dl4plans,
I see on your previous post, you have some answers, but there will be lots more questions.
I am not sure if a crises is always going to happen. I thought I was doing great on mestinon for about 3 years ( I was diagnosed in 2012). Most of the people on this forum seem to have had crises problems, but I guess that would cause them to be here.
I had mine in Oct 2015 and again in Jan 2016. I learned I couldn't work, like I had been. I am 78 now, so could have been retired anyway. I am now!!!.
You will get lots of answers here, if you stay on this forum.
Be careful of issues such as breathing, swallowing, and extreme fatigue, as those can be signs of a crises.
Hope you can continue to do well.
FREDH