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Old 08-10-2016, 04:49 PM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by Pyr2 View Post
Believe me MAT, i know low serum complements are weighty and I PRAY for positive lupus tests just to have an answer, thats sad.

I have so many central nervous symptoms and oligoclonal bands in my csf which show inflammation/immune activation there - ironically Sjogrens (and sarcoid) are two of the neuro presentations that can cause this as well as CIDP which I also have.
I relate to your sad. I too have paired oligloclonal bands in my CSF. Have you had a lip biopsy done yet? you obviously have an autoimmune process going on so it really is just a matter of leaving no stone unturned in order to find it. Persistence is the name of the horribly long game.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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