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Old 08-15-2016, 09:59 AM
FREDH FREDH is offline
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Join Date: Jul 2012
Location: San Antonio, Tx
Posts: 140
10 yr Member
FREDH FREDH is offline
Member
 
Join Date: Jul 2012
Location: San Antonio, Tx
Posts: 140
10 yr Member
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Quote:
Originally Posted by Snoel View Post
Yes I have, when I was first admited when I had my crisis in April of 2015 IVIG was my first treatment, I was infused for 3 consecutive days which if I remember right took around 8 hours each day, I was in really bad shape their main concern was my breathing, my lungs we're really affected and could barely speak nor swallow so they said that IVIG was the quickest and easiest to try to get me stable as quickly as possible compared to PLASMAPHERIES which is a more complicated procedure...

Click on link bellow;
Plasmapheresis | Definition & Patient Education
I have had both treatments. I had a crisis in Oct 2015 and again this year in Jan 2016. I had IVIG Oct and it did not help. Also made me feel really bad. The doctor talked me into Plasmaphersis and I was much better after just 1 treatment (5 are recommended ). I also had some out patient treatments in Dec 2015. They did not seam as good. I went back to the Hospital in Jan 2016, and got the full 5 treatments.
I have ben much better since, although all my medicines were increased also. Hope this helps. Good luck
FREDH
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"Thanks for this!" says:
ErinBear (08-15-2016)