View Single Post
Old 08-16-2016, 12:12 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

An acid reducing medication for swallowing issues? Wow. Not very logical.

I'm concerned that you need help NOW. These guys are putting you off until you can have another appt, is that correct? From your symptoms, you need to have some IVIG in the hospital or some other form of treatment.

Nothing can be done if someone is choking on their own saliva? What are we in, the Dark Ages?

First of all, lowering your chin (not raising it) will help with swallowing. But if your MG is bad, only more treatments will help.

Are you waking up at night choking? Are you sleeping with your head propped up a bit? Are you staying cool-ish? Is the rest of your body weak?

A simple clinical evaluation will clue the doctors in.

One doctor had me sip on a small cup of water, one sip at a time. That's a useful test in MG, since we become worse the more we do. If you are unable to swallow at sip #1, that should clue them in as well!

Are you confident in the help you are receiving from these doctors?

No MGer's life should hinge on what might be done at some future appt. If you need help, seek it out right away.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ErinBear (08-16-2016), sandy56 (09-01-2016)