Hi health girl. We don't but my sister spends a huge amount of time here. Our symptoms both started in December 2012 . It seems a big coincidence if it's genetic? Hope you are getting some answers for you and your family. When I see my neuro will explain what's been going on. I'm very surprised that my sister's neuro told her not to have the biopsy as if it sfn then it's genetic . I would expect a good neuro to look into this further it is awful.