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Old 08-19-2016, 10:06 AM
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
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JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
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Quote:
Originally Posted by northerngal View Post
I went to northwestern and met with Dr Burt to try to get the stem cell treatment done for CIDP. I went through all of the required testing, after reviewing everything he told me that he did not doubt that I had some sort of immune process causing my neuropathy, but he did not feel it was bad enough to go through his stem cell procedure.
There is risk to wiping your entire immune system out, so I guess they want to be sure our condition is bad enough to warrant the risk.
There were people who had success with it on a former CIDP board I was on. It was a requirement that they had failed other treatments before getting into the clinical trial Dr. Burt was doing.
That's really interesting northern gal. They are pretty rigid on clinical trial selection and i do see why. It's frustrating for us though. Alot of us dont fit into neat boxes required for clinical trial selection.
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glenntaj (08-20-2016)