Maybe it would be easier to find support groups or set a new one with people suffering from chronic pain, and not just SFN.
My best friends have fibromyalgia, M.S, lupus... the treatments and tests are somewhat different, but we all share the fatigue, disability and dealing with a chronic illness, and struggling with the health system.

By the way, 30-50% of the people with fibromyalgia have undiagnosed SFN, so we have a lot in common.