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Old 08-20-2016, 02:30 PM
Pyr2 Pyr2 is offline
Junior Member
 
Join Date: Jan 2014
Posts: 49
10 yr Member
Pyr2 Pyr2 is offline
Junior Member
 
Join Date: Jan 2014
Posts: 49
10 yr Member
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Thanks for replying! Im glad Im not alone. I feel so awful with all these head symptoms and it seems like you have them too. It really makes me doubt the diagnosis. Since I posted (two weeks ago?) I had a few really good days. I exercised, didn't research and just put it in God's hands. As my pharmacist pointed out, that was actually 22 days after the IVIG and that seems to be the point at which IVIG is the most effective so who knows! Maybe it is working on some minimal level. I start another round in 10 days so crossing fingers. I also added some autonomic meds (midocrine and florinef) to my regime and topimax for the headaches. Hope you are feeling well....

L
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