Just wanted to comment on the WBC issue. Mine is low too, whereas it wasn't before my illness. There's a link between low WBC and autoimmunity. This might be useful:
Wbc. I've been hovering between 3.5 and 4.5, and 4 is the lowest end of normal. I may still have a bone marrow biopsy done, if it stays low. Hope that's somewhat useful. And I hope the best for you with the new treatment!
Quote:
Originally Posted by Sven
Hi All...
I just finished this week with my initial load of 150g of Gamunex IVIG over 5 days...30g a day. All went well...tolerated pretty good...bad headache on the 4th along with muscle pain...and mild headache on the 5th...also I have had some nausea after eating...but that is about it.
I felt real good after day one and two...seemed like the PN was real mild...but that was prob coincidence since the pain came back near the end of the treatment. And Like EB said (and my doc too) that it will take 3 to 4 months till we see any efficacy...hope it works and knocks some pain down...talked to one of the nurses and said they just had an individual in the infusion unit that said it helped her PN alot...but don't know the diagnosis or circumstances.
jake: EB is right you need to get a dose that is for your specific issue and you need to give it time...also did you get Gamunex...the nurse at my center said that is the best stuff on the market...but I can't back that up with any studies...so I am taking her word.
I see my doc in a few weeks...I guess my WBC before the IVIG was real low...and she wants it retested...anyone else have any WBC count issues with PN...is there a link there?
Anyway keep the fight...sven
Keep the good fight going...
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