Was Dx'ed with this last week after various suggestions that it might be CIS/benign MS. Two MRIs 6 years apart clearly showed it is not MS. EMG (what a lovely test that is--NOT!) showed serious axonal loss to the feet and ankles and starting in the calf muscles. Idiopathic since there isn't any booze, drug, chemo, or diabetes action.

As near as I can figure out, this started about 14 years ago. During all that time the feet have become more and more numb and gobs of muscle fasiculations, mostly legs, but all over the body. Dr. says no chance of ALS thankfully.

When I was being tested with the needles stuck into the muscles, my neurologist read the results of the right calf and immediately said, "Hmm. We have very new damage here." I have never heard of this sort of thing. Balance is terrible and I have taken to using a walking stick for balance. But, what is coming? Is this going to continue to burn out axons up through my legs?

Thanks for any insight/help!