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Old 08-22-2016, 06:40 PM
bluesfan bluesfan is offline
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Join Date: Jun 2014
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8 yr Member
bluesfan bluesfan is offline
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Join Date: Jun 2014
Posts: 733
8 yr Member
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Quote:
Originally Posted by JoannaP79 View Post
I have ankylosing spondylitis as well as neuropathy everywhere. A.S is in the same ' family' as PsA. I had A S first forbyears and then developed the neuropathy. It wasn't drug induced, it came on its own. I dont think there is always a clear connection between autoimmune problems and if you have one you may well get another- not necessarily linked to the first. What makes it all so tough is finding treatment that can address the different autoimmune mechanisms in one hit. Different disease modifying drugs target different mechanisms within the immune system.
I did find that when I took Enbrel for my A.S, the neuropathy was better - everything was better. But not entirely and I felt not enough to continue. I stopped it and now am trying to find the right thing to manage it all.
I developed the neuropathy before Enbrel so there is no connection there.
Hi Joanna,

Not sure if you've tried Humira (Adalimumab). I know of someone here in NZ who has been prescribed it for A.S. (and my brother takes it for R.A). It's fairly expensive but if it's available in NZ under the public health subsidized pharmaceuticals it's probably available in the UK. I have no idea if it's effective for neuropathy. My brother says it's far more effective for RA than anything else he's had (eg methotrexate, celebrex, prednisone, etc.) and with less side effects.

Hope this is useful. Sorry dreamer for jumping in on your thread. You may want to search the site here for Psoriatic Arthritis (or Psoriasis + neuropathy).
I vaguely remember someone posting a while ago about having PA and neuropathy or some connection.
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_dreamer_ (08-25-2016)