Quote:
Originally Posted by schwad01
Is this you???
Similar to previous but i think it's worth emphasizing-The more I pay attention the more convinced I am that the state of my gut is the strongest driver of daily as well as more prolonged fluctuations in my Parkinson's symptoms. I am quite certain that this phenomenon is worsening over time--as every time I think i can go back on my "old" diet I pay a heavy price. As I've said before- because of the Entacapone in Stalevo- I can tell how much drug I am absorbing based on the color of my urine ( accounting for how much water I'm drinking). It is becoming predictable- when I'm having a bad day for a reason that isn't clear- within hours to a day i will have some bowel issue-- for me more diarrhea than constipation--as I use fiber and Miralax daily. When I have this "bug" or dysbiosis (leaky gut due to changes in my bowel bacteria) or both or ??-- I will have more gas-more bloating-my urine will reflect that I am getting much less drug into my bloodstream and if I eat dairy, simple sugars or starches -- I feel like "crap"- stiffer-slower-more tired and brain fog-- this is quite distinct from the predictable interaction with ingested protein--- the only silver lining is I know that with time and getting back to a "better" diet- taking probiotics- and quite possibly having a viral syndrome resolve- I will get better-! Sorry again- but what a "pain in the ***"
|
Hello Schwad,
I think your experience is rather common amongst the crowd who seek complimentary medicine methods. Although it seems the devil lives behind the detail curtain of this malady therefore many iissues are unique to iindividuals there are some common patterns. Imho the digestive tract is key -Janice Walton-Hadlock chinese medicine practitioner identifies parkinsons as fundamentally exhibiting rebellious chi flow in the stomach channel with significant trauma blocks in the feet. How many posts do we see in here about feet dystonia??? I wonder about the rash of early onsetters born in the genera tion where mothers stopped breastfeeding their babys as anemia another sign of inability to digest nutrient (incuding minerals such as calcium etc etc) is also common in the pd crowd. I notice that if my bowels are moving my med is more effective so the magnesium I take is as essential as the med. Dairy doesn't seem to bother me as much except the hard cheeses definitely slow my bowels and med effectiiveness. This raises a larger question in my mind of what does iit say about uus thhat we are unable to receive nutrient in a larger sense as this may apply in many ways as a signature dynamic.
I've heard it said tht a very long time ago in ancient Egypt it was the gastroenterologists (not the neurologists or cardiologists) whose position was at the top of the pyramid of hierarchy of medical practitioners
Below a link to conversation with a naturopath from Australia who talks quite a biit about exactly what you posted on - I listened to it yesterday so was interested to read your corroborating post this mmorn......must be in the air...
Q&A with Naturopath Doctor John Coleman 8/23 by Parkinsons Recovery | Health Podcasts
cheers mate!
MD