Yesterday, I had my appointment at the teaching hospital. I wanted to report that the appointment went better than I expected, and I'm grateful. The neuromuscular specialist was concerned that I am doing so much worse than I was a year ago. He wants to repeat the EMG testing. I asked if that was a good idea, since repeated testing has always had negative results so far. He still wants to do another test. If that's negative, he wants to do a muscle biopsy. They also did respiratory testing while I was there, as I was having a lot of trouble breathing. The results were quite low, which is concerning. But I guess that is additional information for them. The doctor asked that I be sent out in a wheelchair.

It is good that he is willing to look into this further now, and hopefully we'll come up with a diagnosis and a better treatment plan. The hard thing is that this will take awhile (weeks? months?) although the specialist will do what he can to speed the appointments. It's also hard as this teaching hospital is not close to me, and transportation is difficult. But I hope we can figure out a better plan.

Thanks to everyone for their kindness and support. I really appreciate it.

Take care,
Erin