Marleen,

It took an X-ray with patchy osteoporosis for me to be diagnosed and I was just damned lucky that the rheumatologist ordered it. I had a classic presentation of CRPS which none of the 10 or so doctors I saw seemed to notice for a year. NOW going into my 3rd year all the doctors suddenly are talking about the visible signs and the Budapest Criteria, now that most of the color has faded, the ligature mark is gone and the swelling is slight. Why didn't they mention the freakin' BC when I had every single sign?

The other day my right foot was a block of burning ice at my PT eval, so cold on a hot day, that the PT commented about it. I had to BEG her to note it in the report.