Geez, Erin, HOW LOW were your PFT numbers?

If a MIP or MEP is nearing even -30/+30, you have to have oxygen at the very least. Breathing always gets worse while sleeping and there's no way to know if you are hypoxic at night. That can lead to brain or heart damage, or damage to other tissues!

If they were really low, they should have admitted you. I'm serious!!! AND they should have run an arterial blood gas. Did they?

I am very concerned about you. Sometimes even neuros don't know everything about MG, or don't stop to think about things like stopping breathing at night!!!

I hope you will keep a phone by you at all times. I hope you don't live alone. Please take any and all precautions you need to, such as sleeping a lot and not doing very much.

You can't wait months for help.


Annie