Quote:
Originally Posted by AnnieB3
Hi, rMuD. Welcome.
HLA B27 is associated with Ankylosing Spondylitis.
Do you have a good primary doctor or endocrinologist? Having your thyroid tested, especially if you have MG, is a very smart thing to do AND on a regular basis. Many people with MG have some sort of thyroid problem. Stupid doctor.
Have you had your vitamin B12 checked? If not, I highly recommend you do, plus your vitamin D level. Those are very common deficiencies.
Obviously, you do have things wrong with your health. And MG can be life-threatening. Kind of hard to go on with one's life when one is so weak and unable!
I hope you will start receiving the care that you deserve!
Annie
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HLA-B27 Is also the test for Reactive Arthristis, Ankylosing Spondylitis can be part of RA as well, but not always.
HLA-B27 antigen: MedlinePlus Medical Encyclopedia
Yes, I have the top multi discipline Neuro medical group for rare medical conditions that have worked on me for almost a decade. MG was missed. MP was also missed for many years. I am difficult. MG fooled the head of Neuro-Ophthalmology for Case Western Reserve University for 9 months as well.
So yes, I have all my ducks in a row. Just waiting for the slow University hospital to get the Thyroid blood panel and the anti-body panels done.. it has been a week and no results yet. Getting annoyed! After that if I see some reason to continue down the MG path, the CAT scan will follow. With the trouble I've had with sternum, I'm pretty sure we are going to find something. Way too many things fit.
I've hit my out of pocket max this year, It's full speed ahead! Neurologist MG specialist at Cleveland Clinic appointment is set for Oct 5th. After the blood work is in, I'll start the Tuesday Morning, cancellation appt checks.
Thanks for the input!
Rob.