LOL Yes, I stubbornly insist on continuing to breathe! I'm funny that way.

I feel a bit dumb, because I have yet to understand how the oximetry readings can be good, when I am having so much difficulty breathing. If they actually do an ABG, it usually shows problems. I am still on a learning curve with all of this. I need to try to do some more research online at some point to understand it. But I think it confuses most of the doctors, too, because they see the oximetry readings and say that I'm doing just fine. I suppose it is because they are unaccustomed to seeing MG patients.

I'm so sorry that you've been hearing stories of MG patients tanking or dying lately through...medical mismanagement? That shouldn't happen. There should be better education of doctors. I know MG is somewhat rare, but it isn't so rare that doctors don't need to be aware of it, and how to treat it.

Take care,
Erin