Quote:
Originally Posted by dogwalker
My response is in regards to meds (which I realize you want to get off of). However, I've used amitriptyline for both CRPS and SFN and wonder if you've tried it at any point? I had SFN in my feet for a year starting in 2005; then the following year developed CRPS resulting from thumb surgery. (Fortunately I recovered from that in 9 months with lots of hand therapy). For the CRPS I took 75 mg. amitriptyline divided through the day, and for the SFN which has returned, I take a single dose of 60 mg. before bed time. The only significant side effect has been dry mouth. It definitely helped with the CRPS pain. I don't think it helps with my SFN pain, but my pain is mainly at night and the amitriptyline does help me get to sleep and stay asleep. This and medical marijuana have allowed me to avoid having to try any other meds which I fear would have worse side effects. Good luck with finding answers and relief.
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Thank you so much for your reply! I did take Amitriptyline for about 6-7 months at one point for my CRPS when I wasn't sleeping at all (like no more than 15 minutes at a stretch because the pain was so bad) and it helped me sleep and I was consistently getting 3 consecutive hours with that. It unfortunately did not do much to help with my pain levels...but I know for a fact that when I am better rested that I can cope with the pain much better. I was able to get off of that after doing tDCS treatments which helped me get 6-8 hours of sleep a night without meds. Now with this new stuff after my fall that all went to heck...but they have me on Tizanidine which is helping me get 4-6 hours of sleep a night and I am grateful for that.
Thanks again for your reply and your insight into this issue!