I'm just wondering if I'm the only one that has moderate to severe joint pain since I've weaned off Predisone this mid June, especially when I sit idle for more than 10 minutes or so it takes me a while to get going, the more I walk and move the better I seem to feel, the more time goes by the WORSE I'm getting and starting to have some concern I even have a FROZEN shoulder now that won't go away at times it keeps me from sleeping...

My specialist keeps telling me it's my adredeline gland that needs to kick in, I was as high as 60mg per day on Preds for 8 months then slowly weaned off to zero June 16th and have not liked the side effects so far, I feel terrible PAIN, PAIN , PAIN joints and some muscles, I keep telling myself I'll start feeling better at a certain point but it's the opposite!!! My nuro even went as far to tell me to take a low dose of PREDS which I refuse to I'm on Imuran, Mestinon and weekly Plasmapheresis and keeping my MG symptoms under control.

The other thought I had is could it be my weekly Plasmapherisis acting up, I'm on my 75th this coming Wednesday, could it be removing something out of my system?