Junior Member
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Join Date: Apr 2015
Location: Madison, WI
Posts: 22
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Junior Member
Join Date: Apr 2015
Location: Madison, WI
Posts: 22
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Hi Jean -
Thank you for your response. I don't think my pain sounds like yours. Yours sounds like my Grandma's was (and quite intolerable also, at least at its worst). I am leaning towards this being something else for me and really appreciate you sharing your details.
I have an appointment with my pain Doctor tomorrow for this and general weird nerve stuff I have had going on so I'm hoping they can shed some light on it. Something widespread has a hold on me right now and this is a part of it. I'm a bit worried about finding an answer actually, it seems like they always just say it's autoimmune and idiopathic for like - everything.
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Age 32 - RSD/CRPS Dx 11/2006 with Severe Small Nerve Fiber Neuropathy and various recurrent issues and autoimmune disease.
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