Hi Jean -

Thank you for your response. I don't think my pain sounds like yours. Yours sounds like my Grandma's was (and quite intolerable also, at least at its worst). I am leaning towards this being something else for me and really appreciate you sharing your details.

I have an appointment with my pain Doctor tomorrow for this and general weird nerve stuff I have had going on so I'm hoping they can shed some light on it. Something widespread has a hold on me right now and this is a part of it. I'm a bit worried about finding an answer actually, it seems like they always just say it's autoimmune and idiopathic for like - everything.