Hi Annie
The paint I was exposed to is a Marine paint that has xylene, naptha, mineral spirits and other chemicals in it. I saw an allergist who thinks that there could be a possible connection between the paint exposure and my worsening condition. He did testing for complement C immunodeficiency and mast cell disease. Nothing definitive yet. I have to get my blood tested for Tryptase within fours hours of my next angioedema episode. I now carry an epipen, just in case.

My heart rate was spiking up to the 150s while I was monitored in the hospital. No blood gases were done.
The Cardiologist says he can use the monitor information in place of a holter monitor to determine what is going on with my heart. The working diagnosis is SVT. I could not take the metoprolol as it made me too weak. Next, they are having me try low dose Cardizem. Fingers crossed

I am also being evaluated by a gastroenterologist for my continued dysphasia.

I have been checked for Lupus many times in the past. My blood work is always normal although I have had many other signs and symptoms over the years.

I am feeling better on the prednisone (hate it) and have avoided Plex so far. It has been a real struggle to keep a positive attitude through these health challenges. I have always had a pretty well controlled disease course until this summer. I have a greater appreciation and understanding for all my fellow MGers these days.
The support here is awesome. Friends and family really don't get it.
Thanks
Sandy