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Old 09-02-2016, 11:36 PM
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Location: Newtown, PA
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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Quote:
Originally Posted by Littlepaw View Post
Hi Kathie,

I am sorry you are having to deal with so much and hope your MG is under control. I am glad the IVIG is bringing you relief on so many levels.

There has been research in the last few years by Dr. Louise Oaklander showing a correlation between small fiber neuropathy and CRPS. There has also been research by Dr. Andreas Goebel showing an autoimmune component in a percentage of CRPS patients. IVIG has been given as a treatment for CPRS and there was a recent trial for it. I am not surprised that IVIG helps.

Here are a couple of links to peruse. There are numerous articles on both subjects available. The SFN article is a heavy but very interesting read about nerve injury in CRPS 1. Though I feel fairly well read, I encountered some technical information in this article that gave me a few aha! moments. The autoimmune link is just a nice, easy summary.

Autoimmunity Linked To Complex Regional Pain Syndrome - Chronic Pain

http://rsds.org/wp-content/uploads/2...eurol_2009.pdf

Sending thoughts of hope and healing,
Thanks for the info, I thought it had to be related. I just worry because most of the drugs used to treat the RSD, exacerbate the MG. So I am very limited to my treatment plans. And the disease kick each other off. And heat is the worst time for me
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