I have held myself back from admitting that I may have an mg problem. My husband has had medical problems for a year and my concentration has been on him. Also, was assigned to use military medicine until I reached 65. I didn't have the energy to endure the many trips to the dispensary to obtain a referral for each specialist. So I procrastinated. For a year now I have had double vision that just seems to get worse. I have experienced weakness in my arms and legs at the most in opportune times. For instance putting arms over head to reach a cabinet or brush hair. Once it was all I could do to run my belt through the belt loops. Usually when I am walking it takes me by surprise that my leg muscles will suddenly feel like jelly or concrete blocks. At times I have had to pull myself up stairs with the bannister. Also, at times I have had to leave the checkout line in a store to find a place to sit. In the past three months I have totally lost my voice twice while talking. It is scary and so embarrassing but my voice comes back after a few minutes. I blamed it on dry mouth. I have also found it to be impossible to swallow bread, crackers or anything dry. I blamed it on dry mouth but had my esophagus checked during my last endoscopy and it was normal. I used to be very active and walked at least a mile a day. I have now sold my kayak and four wheeler because they just exhaust me to no end. I actually feel that we may need to consider a retirement village because maintaining the house and boat is killing me. (We did hire someone to do the yard)

Five months ago I began seeing a new Dr on Medicare. I explained the weakness, fatigue, family history, and double vision. After normal CBC, normal chest X-ray, normal mammogram; he was confused so he ordered another chest X-ray. I live in Panama City, FL with limited medical professionals. I made an appointment to see an ophthalmologist who specializes in double vision. What a breath of fresh air. I have cataracts that will be corrected this month. He was alarmed about something he saw in my eyes so he ordered the blood test for mg and set me up with a new pcp who I see this month. As you all know my brother and sister both tested negative for mg at first. So I conclude that I have tried to rationalize my symptoms away to old age (65);however, I don't feel that I should feel this badly. I used to work gung ho on a project all day and rest. Now it takes me weeks to wash the motor home. I work for five, sit down for five with a cool rag and drink, and I am restored to work another five. I do this for about an hour until I feel I may fall if I continue. Not normal. I have had what I call severe pain in my neck off and on for over a year. The pain comes when I am stressed, traveling, or have overdone it. Had Orthopedic X-ray and he found only mild Arthritis and sent me to a pain specialist who I quit seeing. The only thing that has helped the neck pain is to recline back in the recliner with my head supported and very still.

So this is my story and I am sticking to it. My mother, two of her sisters, my brother and my baby sister have mg. Don't know if that is what I have, but I have something.