Sandy, Did they do a D-dimer to check for a clot? Has anyone done any tests for clotting disorders? APS (antiphospholipid antibody syndrome) is common for those with AIs.
It can be hard for anyone to understand a disease who doesn't have it. You could ask them if they could run their car without gas. Our muscles can't run well because we don't get enough "muscle gas." Maybe that would help.
I don't think healthy people want to even consider what it means to be ill!
Whatever is going on, I hope they'll be thorough.
Annie