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Old 09-04-2016, 10:43 PM
alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
10 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
10 yr Member
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RSD31 does mayo treat full body rsd well and do they do all the treatments such as ketamine and everything. I do know they probably are good when it comes to heart and lung issues as my cardiologist had worked there and knows all the drs I would need to see and would set all the appts. so I would have to go to 1 and then wait for days for the other and try and set up for the surgeries soon. But my worry is the rsd, my dr I have here knows how to get me in and out of surgery without going backwards I deal with a flare for a week or 2 but isnt bad. I would just hate to go somewhere that cant understand all 7 conditions and realize I come as a package with all my issues and they all need tending to at the same time. I do know the heart and lung issues are whats going to kill me and I have about a 5 year life span just with the lungs unless I get transplants and my heart is any day until all the surgeries and treatments need are done then would like my heart have 5 years unless I get a transplant. I have made an appt. at Hahnemann hospital with an electrophysiologist to see if their heart teams and pulmonary teams can handle what i need, I am looking into them as I know shwartzman use to work there and know some of his colleagues have taken over so with ask the heart drs if they were to help me if their rsd specialists can help with the pain, I did call the pain drs office about the help I need and waiting for word back. But if Hahnemann hospital doesnt work then will be going to mayo. If any one has been to mayo for pain if you can share your experience so I know what they r like. Thank you all for your help
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