Do you have a link for the new thymectomy study? Is it on PubMed? MGFA? I've been super busy lately (which means super weak) and haven't had time to do any research.

Dysphagia is a symptom of MG. Why are you seeing a gastro about that? Sorry, but unless you are having GI issues, how are they going to help you with a neuromuscular one? Or has someone said that they think the dysphagia has another cause?

Yes, MG is exhausting. There are days when it is too much to deal with. But most days are okay.

If you haven't had your thyroid checked lately, that would be a good idea as well. People with Graves have a high heart rate.

Graves' disease Symptoms - Mayo Clinic

Please don't become a medical mistake. Make sure they thoroughly assess what is going on with you, okay? Drugs are useful, but if they don't have a "why," how can they appropriately treat what is going on? No, you don't want to go around with a high heart rate, either.

MG that is not treated sufficiently can also cause a high heart rate, but not usually high unless one is doing an activity. I mean, not high while merely sitting still.

Let's hope they can figure this out soon!

Annie