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Old 09-06-2016, 12:11 AM
Caprice Caprice is offline
Junior Member
 
Join Date: Jul 2016
Posts: 9
5 yr Member
Caprice Caprice is offline
Junior Member
 
Join Date: Jul 2016
Posts: 9
5 yr Member
Default Depression setting in yet no diagnosis of MG

About a year ago i became very breathless and extremely tired. As I had high blood pressure and an ectopic beat, this was the doctor's explanation for my symptoms, which didn't improve with medication. Then a few months ago, when I was tired my speech would slur. My doctor had me hospitalised as a brain stroke was suspected. The brain scan came back clear, but the slurred speech became worse so that now I am incoherent, not even my husband understands me. I also noticed, at times, I would find even soft food a bit hard to swallow. This continued, then I would start coughing and choking for no reason. Then one night, passing the mirror on the way to bed, I saw my right eye lid had dropped. In the morning it was okay. A few mornings later, I awoke with the right eye lid closed. I prised it open and my vision was blurred. After a few minutes the eye returned to normality. Sometimes my neck aches so bad I can't look upwards. When I was hospitalised, my blood test for just one antibody came back negative for myasthenia. The EMG carried out in my left shoulder, lower arm and hand, plus around the eye area came back normal. The hospital neuro said he didn't know what was wrong with me. Most of my weakness is in my lower legs and back. I have camptocormia and I read that myasthenia precedes camptocormia. I also have hypothyroidism. I went to see one neuro privately and he suggested my symptoms might be pyschomatic if more tests come back negative. This has left me feeling very depressed, as now I think no one believes me. My speech therapist believes me because she said no one can have such severe dysarthria as mine and it be all in the mind. I sleep away most of the day, as I find bed rest alleviates my symptoms. I'm sure the word pyschomatic is printed across my file. I am 75 years of age, why would I want to make things up? I happily married and just want to fully live my remaining years. Thank you for your time. I'm so depressed at not being able to communicate or be understood, having to drink energy foods and not eat solids and feeling so tired all the time.
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