Quote:
Originally Posted by NurseNancy
i hate when drs can't immediately find out what the problem is and their answer is to dismiss the patient.
i have a couple of thoughts.
1. do you have a pcp? i would make an emergency appt with him. let your dr play middle man to direct your diagnostic care.
2. sounds like you need a urology consult. since this sounds like it might be MS related i'd seek the next level of care which would be a urology consult.
be sure to drink enuf H2O. don't get dehydrated. take your temperature at least once a day and make sure you don't develope a fever.
please let us know how you are. don't give up. you're your own best advocate.
oh, PS. maybe if you feel you need another ER visit try another hospital.
since this sounds like it might be something atypical you might want to consider skipping a "clinic" and see your own dr.
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Okay, a little update.
The urgent care happens to be where my pcp is, I just got back from seeing him.
I have to drink near a gallon of water a day to be able to tolerate the pain.
I do also have about once a day for an hour or so that I'm so cold seven blankets and a hoodie don't get me warm.
I see a urologist on the 14th.
I live in a small town and of the two local hospitals I went to the only one you would ever catch me in. The next closest hospital is 2 hours away.
My doctor says he felt some subcutaneous nodules, he says calcium deposits, where the pain is. But he doesn't understand what is causing the pain.
They gave 1mg of dilaudid tonight to try and break the pain cycle and see if it will help.
They say I should be passed out right now, but it made me wide awake and shaky. It is only helping the pain if I lay perfectly still on my left side.
I called my neurologist today about my wbc, she says it could be the Rebif and she wants it monitored monthly for a while. I couldn't think clearly to ask about this pain. I will call her again tomorrow.
Thank you for your advice, I will keep you posted.