Thank you everyone.

The only pain I get with a uti is a burning pain in my back, right at my kidneys.

I'm in the process of trying to switch my neurologist to someone who hopefully understands all of my conditions.

Hopefully I will get some help that way.

I will make sure nobody ever gives me Dilaudid again. It gave me a horrible headache, made me shaky and weak, made my heart pound and gave me horrible insomnia. I got 3 1/2 hours sleep last night. I was balling at 11 because I was so tired and couldn't sleep.

My poor husband. Thank goodness he is an amazing and patient man!

I can't even think straight to remember what I wanted to say because of being so tired and in so much pain.

Thanks again for all of the advice and well wishes. I will keep you posted on my progress with this as much as I can.