Welcome to Neurotalk.

What a nightmare you have lived.
I can relate because I have a seizure disorder from Lyme disease. decades ago, In order to prove I had a seizure disorder, they flashed a strobe light in my face until i had a seizure, and like you, was put into that surreal state. That is a horrible feeling to deal with...you have my utmost sympathy.

I also had a massive seizure from a medicine reaction and was in an impaired cognitive state for months, also in that same, dream like state you describe.

Have you seen a neurologist or any docs to help you figure this out?
Ever tried any meds for this?
Did you fall when this happened, perhaps causing a brain injury?
I take Lyrica for neuropathy and it seems to keep my seizures to a minimum.

I am sorry for what you endure and hope someone comes along who can help.

My best,
Diandra