DocJohn-

This one is giving me heartburn:
These forums strictly prohibit any research being conducted on them for any purpose whatsoever. Any user of this forum is prohibited from conducting research on the forums in any form, whether it be as a group or on an individual poster. You are welcomed to post announcements of clinical trials or other research topics you believe are of interest to other members in the community.

In the Parkinson's forum of BT1, a small group of us routinely tried to gather information that didn't exist elsewhere, tried things that sounded reasonable, and reorted and discussed our experiences. A recent example was a survey I did on how many of our number had problems with childhood constipation. I had checked with at least one high level doc and the data simply did not exist. It turns out that over half of us remembered such a problem. Given the fact that toxins are resorbed into the system that may be a big clue.

My point being that there is value in that type of interaction among ourselves. Now I don't want outsiders treating us as white rats but I feel that it is a huge mistake to ban us doing it to ourselves.

Can this be reconsidered? Or perhaps a special area marked off for it?

Also, what is the reasoning for prohibiting referring people to similar sites?