Hi, Piper. Which doctor put you on oxygen?

Have you seen a pulmonologist? Cardiologist? It's always good to make sure what exactly is causing the low oxygen saturation. A pulmonologist can evaluate if it's neuromuscular weakness that is causing it. Most people with MG have a pulmonologist to follow them and track any changes.

How low does your O2 go? Have you had an overnight oximetry? A sleep study? ECG? Arterial blood gas?

The other thing that a pulmonologist can look for with MGers is something called atelectasis. It's when a MGer can't breathe in well enough and can have a small collapse of a portion of the lower (usually) lung. Don't be alarmed by that! It's reversible. I've had it a few times.

A chest CT is normally done for MGers after they are diagnosed because some of us have a thymoma, a tumor in the thymus gland. Don't be alarmed by that either!

Did your neurologist put you on any medication?

Plaquenil can be a problem for some MGers. FYI. How MGers respond to meds varies. There are some drugs MGers should not take. Go to Home for more information.

What else can we help with?

There's a lot to learn about MG. For instance, it can become much worse in hot and cold weather, during an infection, while stressed, without enough sleep, after surgery, and loads of other reasons!

Until you get used to the disease, take it easy!

Annie