Originally Posted by Piper123

Hi Erin, Marijke & Annie
Ty for ur responses. I was beginning to think I was the only one on o2. To answer questions. Yes, I have had all those test done at the mayo clinic and from my pulmonologist. I don't know the name of the one test where u breath super hard in tube several times, but when I did that my arms and legs went totally paralyzed for about 40 min . It was crazy. They also tested me for all the lung diseases which was neg. they never said why I needed it just that I do. It's been a while since seeing a pulmonologist . I feel like if I go they just run every test in the book and than all I get from it is bills. Im on pyridostigmine 60 mg 3xad. I use to be on plaqunil for my lupus but got off it bc I was worried about effects on my vision and it didn't seem like it was helping. I live in VA and have alpacas and Im outside a lot. The heat takes a terrible effect on me. Sometimes not sure if I will make it back in the house , but the give me a lot of joy. Thank u again