Did they do an echocardiogram, looking for pulmonary hypertension? That's not the same thing as regular hypertension/high blood pressure.

MG can cause more severe breathing issues if it hasn't been treated yet or not treated sufficiently. Mestinon doesn't seem as though it is enough for you. Have they talked about other treatments such as IVIG?

Also, More of a dose of Mestinon isn't necessarily better. Some people, me included, take Mestinon every three hours, round the clock. Speak to your neurologist about tweaking your dose if you feel it isn't sufficient. The drug only lasts two of the three hours after it's taken.

Do you have any side effects of Mestinon?

You have to be more careful outside! Do you take a phone outside with you? Can you keep to the early morning hours when it's less hot? We are getting into fall, but you still need to be careful, especially now when you don't know how bad your MG could become.

It sounds as though you might need another appointment to discuss more help.

Annie