Quote:
Originally Posted by Becca71
When I fell a few weeks ago, we thought I re-broke my foot, but it turns out that the first metatarsal fracture never healed. Yep. Come to think of it there never was another imaging done to check.
Which means, in order to really be able to get 100% of whatever my functioning is going to be able to be with CRPS I'm going to need surgery. Except surgery with CRPS is highly likely to cause a flare. But not having surgery is highly likely to leave that area in my foot in more pain and less stable. Catch 22.
So his suggestion is to keep doing the PT and desensitiztion I was doing before until I reach a point where I'm not improving anymore. Then do the surgery. Knowing that I WILL have pain and being prepared to manage it. And then after that, with PT, I should be able to have better functioning than I did before.
He says he needs to go in and scrape off the "bad bone" and then put in a pin.
AND it validates that the pain I continued to feel there that I was told is healed and is just my faulty nerves isn't. It is real pain from a never healed injury.  |
Great advice from 3 people already.
There is hope. You should not have to go into surgery without a good game plan for preventing your worst fears. I really like the first link that Bio sent. It is dated 2004 so there should be more info since then. My brother and sister both had knee surgery, so I asked my doctor what could be done if I ever needed it. He said they have had good results using ketamine along with the anesthesia. I have also been told about nerve blocks. Do your research and talk to your doctors about it.
Here is a link for more peer reviewed articles on CRPS and surgery. You have to scroll down to find the section on surgery. They also give a link and instructions on that page for pubmed peer reviewed articles.
Peer-Reviewed Journal Articles About CRPS/RSD and Related Syndromes | RSDSA
Good Luck and remember that there is hope.