Hi all, I am a 20 year old student on medical leave. I have been seen by a neuro who completely disregarded my GAD65 result of 29.9 nmol/L because of my cocurrent type one diabetes (diagnosed 8 years ago), despite the fact that I have an EMG confirmed complete left leg numbness for now two months (in my report as left lateral femoral cutaneous neuropathy). Should I seek a second opinion for Stiff Person Syndrome, and if so - are there recommendations for neurologists? I am located in Minnesota but have seen a Mayo Clinic neurologist, the one that completely would not listen to me about GAD65 and my symptoms, despite the positive EMG in combination with my positive GAD65, which is much higher than it should be for just T1D.

Any advice would be very helpful. I have not heard of just numbness for SPS, but I am young, and am wondering if we have caught this before other symptoms are on their way.

Thank you for any help you have to offer!