Erin, Did they do the SFEMG?

Do you talk? Do you eat? Do you drink beverages? How many people do you know who need to exercise their swallowing muscles because they are weak? Does that sound like something people are just born with or magically lose the ability to do?

I think you have that reversed. Your doctors are in a holding pattern. They are the ones taking you on this diagnostic flight. Hopefully they will come up with something brilliant to do, such as a muscle biopsy, in order to end this medical journey. They sounds as though they know what they're doing.

The thing about IVIG is that it can last quite a while. Much longer than Mestinon.

I hope you and your docs will figure this all out soon. In the meantime, try not to dwell on a negative test. As I write in my book . . .

If it's not cold and snowy out, does that mean it's not winter?
If the Queen of Heart isn't yelling, does that mean she's not angry?
If one can't see the Cheshire Cat, does that mean he's not there?

The truth is rarely found in a negative.


Annie