As you said, your rheumy (and your area) doesn't seem to have the expertise on Sjogren's, and this may be clearly evident by his comment that SFN doesn't progress in those with Sjogren's (very wrong). Was this the old doctor that just retired? I doubt he is up on the latest with Sjogren's.

I'm hoping your large teaching hospital offers you more options and opinions.

There are numerous articles (that have been posted on this board as well as Sjogren's World) that document the neuro complications (including SFN) of Sjogren's. There is NO mention of non-progression or that it will cause certain amount of damage then no more and patients just have to live with it. Sorry but that just blows my mind. But I feel confident you will get other opinions from your new rheumy and the team at this teaching hospital.