Quote:
Originally Posted by thortime
Hi Marc, thank you so much for sharing your story... I had a few questions and would love to hear your thoughts:
-You mentioned that you originally tested positive for venous tos. Which test confirmed that? My doctor wants me to have a venogram and IVUS, but since they're both invasive, it makes me nervous.
-Clinically, it seems pretty clear that I have venous tos. I feel like the venogram and IVUS would simply confirm the clinical exams. Do you think that it's necessary?
Hope everything is continuing to get better and better for you.
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I'm sure you have found more answers by know, but I had a MRI w/contrast (MRA) with arms raised. This showed occlussion of the subclavian veins.