Hi NYM!

Happy to hear about your big improvements. I am afraid that I am also unable to recommend any places in New York for outpatient PT since I am from PA. When I was initially diagnosed, I had no clue what I was dealing with, but I was fortunate to have a doctor who knew where to send me. Since that time, I have learned to question everyone and everything when it comes to CRPS. Six years later I needed PT for problems not related to CRPS ( age related), but I was not going to have anyone treat me who did not have some experience or knowledge about CRPS. It is just too easy to cause a flare-up or spread to a new area. I could not use the same therapist since she was a certified hand therapist and this was back related. I went to a new center with a written list of questions before I even began therapy. They were more than willing to address all of my concerns. Fortunately I found a good place on the first try.

I don't know why you felt NYU was terrible, but you can start your list of questions with those reasons. Your pediatric pain program specialists probably made specific recommendations. Make sure that any new place will follow those recommendations. You also know what has and has not worked for you, so let them know before you get into the program. In other words you just have to be an advocate for yourself before committing to one program. You sound like you have been advocating for yourself already and are an amazing young person. Good luck with this new challenge. My thoughts and prayers will be with you.

Shay