It's a very long, ridiculous story. Suffice it to say that I'm only on Mestinon. I also take Flovent (inhaled steroid), due to the fact that Mestinon caused asthma. So it too treats my MG.
Do I need more treatments? Yes. Do I trust those neurologists in my state to help me? Well, considering that they consider me a whistleblower (filed medical complaints against them after I found out that they intentionally (allegedly) hid a positive antibody test from me), I CAN'T get additional treatments.
"If I can bathe, clothe, and feed myself, I don't need additional treatments."
As if.
Play nice with your neuro, even if he or she isn't perfect.
Annie