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Old 09-16-2016, 01:10 AM
stillHoping stillHoping is offline
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Join Date: May 2015
Posts: 154
8 yr Member
stillHoping stillHoping is offline
Member
 
Join Date: May 2015
Posts: 154
8 yr Member
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Hi MAT,
I'm glad you finally got good doctors that takes you seriously and I hope that with the Sjs diagnosis you would be able to get proper treatment.

Regarding rituximab, I got it now because it was found helpful when I had it for Lymphoma a few years ago. I found very little documentation about its effect on SFN and POTS. For what it's worth, in my case it helped tremendously my POTS, fatigue and brain fog, and it somewhat improved my other SFN sensory & autonomic symptoms. It took a while to work, the main effect lasted for 2-3 months and then started to fade. I got a second course and waiting hopefully…
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