I'm sorry if this was already discussed. Did you have a full autonomic work up?
Tilt table, halter monitor, sweat test? So many of your symptoms seem like autonomic dysfunction. If you have the sfn symptoms, it could very well be dysautonomia causing the organ malfunctions and disequilibrium. It can cause distortions in vision, dryness in secretions, vertigo, among a hundred other issues. I am also back and fourth between a borderline SJS diagnosis vs another random connective tissue/neurological disease. I have some doctors say they think its autoimmune SJS and some say no, it is the autonomic damage causing the SJS symptoms of dry eyes.
Do you have a history of autoimmunity in your family?