I'm glad you were able to get in to the neurologist. Hopefully, you are not in a flare and don't need steroids. I have a new neurologist now and haven't had a flare so I don't know how he treats flares; but my old neurologist didn't do IVSM unless the flare was severe and/or involved the eyes. Do you react the same way with Acthar? If not, that may be an option for you.

I'm so glad to hear your DD's test results have been negative! I hope the rest of the tests come back negative as well.

I hope you start feeling better soon.