Originally Posted by madisongrrl

If it's the standard western blot the bands might be negative because your immune system is so compromised that it's not producing antibodies. You might have a strain of Borrelia that isn't included in the western blot or you might have co-infections that certainly won't be tested for. Prior to my iSpot Lyme test, I was given antibiotics for 6 weeks, then I was tested.

If I were in your shoes, I'd probably follow up with Pain Mgnt. You never know what type of clever doctor you might meet who might want to try to find the cause to your symptoms. I'd push your primary to get more lab tests done - especially autoimmune. If nothing turns up from any of the testing and your primary gives up on you, then see a LLMD if you think Lyme disease might be a reasonable avenue to pursue. It's helpful to the LLMD to get everything ruled out prior to seeing them.